CADES Transition Guide

CADES Transition Guide Resources
WHAT TO LOOK FOR IN POST–21 DAY PROGRAMS/RESIDENTIAL FACILITIES
- Staffing: What is the staff-to-client ratio? Do they accept 1:1 assistant/nurse? Do they have therapists? How long has the staff been there? How do the staff relate to the adults in the program? How do the staff relate to each other?
- Food: Do they provide lunch/snacks? Are there choices? Does each individual bring their own lunch/snacks? Is there refrigeration/ microwave? Is the staff trained in tube-feeding?
- Technology: Is the staff trained in the use of assistive/augmentative devices? Can the staff provide assistance to access AAC? Power wheelchairs? Computers?
- Community Outings: How often? Who participates? Lift vans available?
- Positioning: Is there a place for the individuals to get out of their wheelchair and stretch? Can the facility accommodate equipment if the adult brings their own?
- Toileting: Is there a place to change diapers? Adaptive toilets? Bars for transfers? Timed toileting schedule? Do they use portable lifting devices?
- Activities: What do the adults do all day? Is there a schedule? Music? Horticulture? Pets? Computers? Dance? Art? Is there staff to provide support for the young adults to participate? Do they move from room to room or stay in one area all day?
- Schedules: Full or part-time? What are the hours? What is a typical daily schedule for the adults? Can you sign up for days or partial days?
- Transportation: Is it provided? Do clients use CCT? Distance from SEPTA routes?
- Atmosphere: What’s the lighting like? Décor? Do you think that your young adult would enjoy spending time in the space?
- Funding: What waivers do they accept? Are there any anticipated changes in funding?
- Miscellaneous: Is there a waiting list? Are there plans for expansion or a change of location? Who gives medications?
- Emergency Procedures: Are the adult’s monitored to prevent eloping? What are the security measures for people entering and leaving the facility?
- Family Communication: How often? What modes?
- Intake Requirements: What is needed to start programming? Current physical and immunizations? Psychological evaluation? Consent forms?
PARENT SUPPORT GROUPS
Parent to Parent of PA
Links families of children and adults with disabilities or special needs to a volunteer peer support parent for the purposes of support and information.
1-888-727-2706
PA Family Network, Vision for Equality
Provides information, connections and support through Family Advisors and provides family networking opportunities. Address:
718 Arch St., 6th Floor North, Philadelphia PA 19106
PA Families Inc (PFI)
Statewide family support networking providing support to families raising children with a variety of needs. Website features an expansive directory of resources by county.
1-800-947-4941
PARENT RESOURCES
The Arc
The Arc is the largest national community- based organization advocating for and with people with intellectual and developmental disabilities (I/DD) and serving them and
their families. They work to uphold a vision that every individual and family living with I/ DD in the United States has access to the information, advocacy, and skills they need to support their full inclusion and participation in the community throughout their lifetimes.
Center for the Blind and Visually Impaired
CBVI is a not-for-profit agency dedicated to helping individuals in the greater Delaware Valley area prevent, prepare for, and adapt to vision loss in order to achieve independence.
Delaware County Advocacy and Resource Organization
610-544-6600
Nonprofit organization that has been advocating for people with intellectual disabilities since its incorporation in 1956.
Nonprofit organization that has been advocating for people with intellectual disabilities since its incorporation in 1956.
Disability Rights of PA
1-800-682-7443 (Live Intake)
Nonprofit organization that has been advocating for people with intellectual disabilities since its incorporation in 1956.
Nonprofit organization that has been advocating for people with intellectual disabilities since its incorporation in 1956.
Down Syndrome Interest Group of Delaware County
610-544-4025
Nonprofit Down Syndrome organization that provides research, education and advocacy.
Nonprofit Down Syndrome organization that provides research, education and advocacy.
Greater Philadelphia Autism Society
Membership based nonprofit that promotes life long access to opportunities for individuals with Autism and their families.
My ODP
1-844-332-2121
Resource created by The Office of Developmental Programs Division of Training and Communication to keep stakeholders informed as to relevant trainings and resources.
Resource created by The Office of Developmental Programs Division of Training and Communication to keep stakeholders informed as to relevant trainings and resources.
PA Training and Technical Assistance Network (PaTTAN)
610-265-7321
Working with the Bureau of Special Education (BSE) and PA Department of Education (PDE), PaTTAN provides a full array of professional development and technical assistance targeted to improving student results.
Working with the Bureau of Special Education (BSE) and PA Department of Education (PDE), PaTTAN provides a full array of professional development and technical assistance targeted to improving student results.
COMMON ACRONYMS AND ABBREVIATIONS
ADP — Adult Day Program
AE — Administrative Entity
CCT— Customized Community Transportation
CHC — Community Health Choices (Waiver)
CLA — Community Living Arrangement
EPSDT — Early and Periodic Screening, Diagnostic and Treatment
HCBS — Home and Community-Based Services
ISP — Individualized Support Plan
ODP — Office of Developmental Programs
OIDD — Office of Intellectual and Developmental Disabilities
OVR — Office of Vocational Rehabilitation
POA — Power of Attorney
PFDS — Person/Family Directed Support (Waiver)
PUNS — Prioritization of Urgency of Need for Services
RTF — Residential Treatment Facility
SC — Support Coordinator
SCO — Support Coordination Agency
SSI — Supplemental Security Income
SSP — State Supplementary Payment